Community research ideas

Your experience can shape a better question.

Share a focused experience, barrier, or idea for private review, with one optional supporting document. No account is required, contact details are optional, and nothing is posted publicly.

Restricted intakeText and uploaded files remain potentially identifiable until a human privacy review.
Private research intake

Tell us what deserves attention.

Use the secure Tally form to share a focused experience or question and, if it adds useful context, one supporting document. You can submit without creating an account.

Private, not publicYour submission is sent to the site's restricted Tally workspace and is not posted to a community feed.One optional documentPDF, JPG, JPEG, or PNG only, up to 5 MB. Upload only your own document and remove unnecessary identifiers.You control follow-upName and email are optional. Leave every contact choice unchecked to submit without contact details.
Not a care or emergency channel. A submission or document upload does not guarantee clinical review, diagnosis, treatment, or a reply. Contact local emergency services for urgent help.

If the embedded form does not load, open the private intake in a new tab . No Tally login is required.

Protected profile and paper-like information flowing into responsible research nodesAI-assisted concept art · not a data-flow diagram
From experience to evidence

A story can inspire research. It cannot skip research safeguards.

This first step helps identify a useful question. A future study still needs a protocol, eligibility rules, appropriate ethics review, and its own informed-consent process. Publication is a separate decision again.

No public feed One private file, if needed Adults sharing their own experience
What belongs here

Share what matters. Limit what identifies.

Keep text fields focused and remove unnecessary identifiers. If a supporting document is important, upload only your own and understand that hidden metadata or clinical details may still identify you.

A care barrier

What made it harder to understand, access, or follow a health plan?

A useful idea

What could make a clinic, app, instruction, or follow-up work better?

A recurring pattern

What part of lived experience deserves a better research question?

A responsible route

Five gates before anything could be published.

Submitting text or a document only opens the first gate. It does not make someone a research participant, authorize broader record access, or grant permission to quote or publish.

01

Private intake

A focused story or idea arrives in the restricted Tally workspace, with one optional supporting document.

02

Privacy review

Text and any file are treated as potentially identifiable until a human privacy review.

03

Study design & ethics

A real research project needs a protocol, governance, and independent ethics review.

04

Separate informed consent

If invited, participation is optional and explained through a new, study-specific process.

05

Publication permission

Nothing identifiable is published from this form. Any later quotation or case story needs exact-material review and separate written consent.

Good to share

  • Your own focused experience or research question
  • A recurring access or communication barrier
  • An idea for education, care, or digital tools
  • One relevant PDF, JPG, or PNG about you, only if needed

Keep out of this form

  • Another person's or a minor's record or private story
  • Identity, insurance, payment, or legal documents
  • Executable, archived, password-protected, or active files
  • Anything needing urgent medical attention or a guaranteed reply